Children and young people have a range of rights that must be respected in research.
According to the United Nations Convention on the Rights of the Child, children and young people have a right for their opinions to be heard on matters that concern them. These opinions need to be heard and understood by adults working in both research and policy-making contexts. Thus, when engaging in research that concerns or affects children’s lives, researchers should take steps to recruit and include children and young people.
In the planning phase, researchers must carefully consider why they require children and young people to participate in their research and what the potential consequences of the research process might be for them. They must develop good strategies to ensure sufficient and diverse recruitment, as well as to mitigate against any potential harms. In particular, research methods should be selected that facilitate active participation by a diverse range of children and young people and that do not expose these participants to physical or mental stress or harm.
Researchers must also consider how both children and their parents or guardians will be informed about the research process. Researchers must inform potential participants about what the research involves, why they want to talk to children and young people, how data and responses gathered from children and young people will be used, and who will be able to access this data. This information must be conveyed in a way that is accessible and understandable for children and young people and in a language that they can understand. If children and young people do not understand the information that is provided to them, researchers should be prepared and able to provide an explanation.
Ethically, researchers should always secure the informed consent of research participants in advance of engaging in research. This implies that researchers have provided the information outlined above about what the research involves and that children and young people have both understood this information and consented to participate in the research process on that basis. In some instances, researchers need to secure the informed consent of both children and young people and of their parents or guardians. In certain countries and legal jurisdictions, parents have the right to decide whether or not their children can participate in research, regardless of their child’s willingness or consent. In other countries, children of a certain age (for example, 14 or 15) have the right to provide consent on their own behalf. Researchers must respect and understand both the legal and ethical requirements that pertain to securing informed consent in the jurisdiction(s) in which they operate.
If children and young people agree to participate in research, they have the right to change their mind and withdraw their consent at any stage of the research process without experiencing negative consequences in this regard. At the outset and on request, researchers must inform children and young people about how they will do this.
It is also important to ensure that children and young people should always make their own decisions about research participation and that they should never feel pressured into taking part in a research project.
During the research process, children and young people should understand what they are being asked to do. Researchers need to provide sufficient explanations in cases where children do not understand what is being asked of them.
Once the research process is complete, children and young people should receive understandable and accessible information about the results of the research.